Caring for Elderly Parents with Dementia in Indonesia: A Maqāṣid al-Sharī'ah Approach

Herlina Herlina, Muyasaroh Muyasaroh, Husaini Husaini, Bakhrum Bakhrum, Zaimuddin Zaimuddin

Abstract


This study explores the patterns of care for elderly parents during the critical period of dementia in order to ensure that their environment is prepared to accommodate any change that may occur. In individualistic societies, elderly care is often delegated to third parties. In contrast, in societies that adhere to religious teachings, caring for elderly parents is seen as not only an act of filial piety but also a form of repayment for the parents’ kindness, as outlined in the theory of maqāṣid al-sharī'ah. This study focuses on the pattern of care from the perspective of maqāṣid al-sharī'ah theory. Data were obtained from the “Herlina Herman Beroni” Sharia Family Law Consultation Institute. Data measurement and analysis were conducted using N-Vivo 12 simultaneously and repeatedly, to generate credible and transferable data. The results of the study showed that saturation and conflict often occur in the process of caring for parents with dementia, especially in the elderly, due to a lack of understanding in collaborating religious and medical knowledge when dealing with changes in the parents’ attitudes and actions. Children, family members, or caregivers are unprepared to accept the transition and changes in the elderly parents’ attitudes, which often leads to misunderstanding and/or neglect of the elderly parents. The implication is a shift in the obligation of children to care for elderly parents caused by discomfort in facing the dementia phase.


Keywords


Caring, Aging Parents, Elderly, Dementia, Maqāṣid al-sharī'ah

Full Text:

PDF

References


Journals and Books

Al-Tahir, Mohammad. Ibn ’Asyur, Treatise on Maqasid Asy-Syari’ah. London-Washington: The International Institute of Islamic Thought (IIIT), 2006.

Artamonova, A., and A. Syse. “Health and Place Do Older Parents ’ Assistance Needs Deter Parent-Child Geographic Divergence in Norway ?” Health and Place 70, no. February (2021). https://doi.org/doi.org/10.1016/j.healthplace.2021.102599.

Auda, Jasser. Maqasid Shariah as Philosophy of Islamic Law: A Systems Approach. Edited by I. London: IIIT, 2007.

Bergeot, Julien. “Care for Elderly Parents: Do Children Cooperate?” Journal of Population Economics 37, no. 1 (2024). https://doi.org/10.1007/s00148-024-00992-2.

Bom, Judith, Pieter Bakx, Frederik Schut, and Eddy van Doorslaer. “Health Effects of Caring for and about Parents and Spouses.” Journal of the Economics of Ageing 14 (2019). https://doi.org/10.1016/j.jeoa.2019.100196.

Bookman, Ann, and Delia Kimbrel. “Families and Elder Care in the Twenty-First Century.” Future of Children 21, no. 2 (2011). https://doi.org/10.1353/foc.2011.0018.

Charenkova, Jūratė. “‘Parenting My Parents’: Perspectives of Adult Children on Assuming and Remaining in the Caregiver’s Role.” Frontiers in Public Health 11 (2023). https://doi.org/10.3389/fpubh.2023.1059006.

Chirico, Ilaria, Giovanni Ottoboni, Marco Valente, and Rabih Chattat. “Children and Young People’s Experience of Parental Dementia: A Systematic Review.” International Journal of Geriatric Psychiatry 36, no. 7 (2021). https://doi.org/10.1002/gps.5542.

Conway, K. “The Experience of Adult Children Caregiving for Aging Parents.” Home Health Care Management and Practice 31, no. 2 (2018). https://doi.org/https://doi.org/10.1177/1084822318803559.

Czapka, Elżbieta Anna, and Mette Sagbakken. “Challenges Related to Providing Care for Parents with Dementia across Borders: A Qualitative Study on Transnational Carers in Oslo.” Journal of Aging Studies 55 (2020). https://doi.org/10.1016/j.jaging.2020.100893.

Fauth, Elizabeth, Kyle Hess, Kathy Piercy, Maria Norton, Chris Corcoran, Peter Rabins, Constantine Lyketsos, and Jo Ann Tschanz. “Caregivers’ Relationship Closeness with the Person with Dementia Predicts Both Positive and Negative Outcomes for Caregivers’ Physical Health and Psychological Well-Being.” Aging and Mental Health 16, no. 6 (2012). https://doi.org/10.1080/13607863.2012.678482.

Ganong, Lawrence H., and Marilyn Coleman. “Attitudes Regarding Filial Responsibilities to Help Elderly Divorced Parents and Stepparents.” Journal of Aging Studies 12, no. 3 (1998). https://doi.org/10.1016/S0890-4065(98)90004-4.

Gheaus, Anca. “Child-Rearing With Minimal Domination: A Republican Account.” Political Studies 69, no. 3 (2021). https://doi.org/10.1177/0032321720906768.

Golden, Hannah L., Jane Vosper, Jessica Kingston, and Lyn Ellett. “The Impact of Mindfulness-Based Programmes on Self-Compassion in Nonclinical Populations: A Systematic Review and Meta-Analysis.” Mindfulness, 2021. https://doi.org/10.1007/s12671-020-01501-8.

Grigoryeva, Angelina. “Own Gender, Sibling’s Gender, Parent’s Gender: The Division of Elderly Parent Care among Adult Children.” American Sociological Review 82, no. 1 (2017). https://doi.org/10.1177/0003122416686521.

Heid, Allison R., Steven H. Zarit, and Karen L. Fingerman. “‘My Parent Is so Stubborn!’-Perceptions of Aging Parents’ Persistence, Insistence, and Resistance.” Journals of Gerontology - Series B Psychological Sciences and Social Sciences 71, no. 4 (2016). https://doi.org/10.1093/geronb/gbu177.

Herdiansyah, Herdis, Agus Brotosusilo, Habibulloh Adi Negoro, Ravita Sari, and Zakianis Zakianis. “Parental Education and Good Child Habits to Encourage Sustainable Littering Behavior.” Sustainability (Switzerland) 13, no. 15 (2021). https://doi.org/10.3390/su13158645.

Jung, Seojung, and Daniela S. Jopp. “Adult Children’s Relationship to Parent Influences Their Views on Aging and Attitude Toward Own Aging.” International Journal of Aging and Human Development 89, no. 3 (2019). https://doi.org/10.1177/0091415018784703.

Juniarni, L., and Nurdina. “Sehat Mental for Caregiver Melalui Pelatihan Penerapan Metode Stoisisme Untuk Menurunkan Stres: Dalam Merawat Lansia Demensia.” Jurnal Pengabdian Kepada Masyarakat: Kesehatan (JPKMK) 1, no. 1 (2021).

Latipah, Eva, Hanif Cahyo Adi Kistoro, Fitria Fauziah Hasanah, and Himawan Putranta. “Elaborating Motive and Psychological Impact of Sharenting in Millennial Parents.” Universal Journal of Educational Research 8, no. 10 (2020). https://doi.org/10.13189/ujer.2020.081052.

Lindeza, Patrícia, Mário Rodrigues, João Costa, Manuela Guerreiro, and Mario Miguel Rosa. “Impact of Dementia on Informal Care: A Systematic Review of Family Caregivers’ Perceptions.” BMJ Supportive and Palliative Care, 2020. https://doi.org/10.1136/bmjspcare-2020-002242.

Lourida, Ilianna, Rebecca A. Abbott, Morwenna Rogers, Iain A. Lang, Ken Stein, Bridie Kent, and Jo Thompson Coon. “Dissemination and Implementation Research in Dementia Care: A Systematic Scoping Review and Evidence Map.” BMC Geriatrics, 2017. https://doi.org/10.1186/s12877-017-0528-y.

Luichies, Ina, Anne Goossensen, and Hanneke van der Meide. “Caregiving for Ageing Parents: A Literature Review on the Experience of Adult Children.” Nursing Ethics 28, no. 6 (2021). https://doi.org/10.1177/0969733019881713.

Luichies, Ina, Anne Goossensen, and Hanneke van der Meide. “Normative Tensions in Filial Caring for a Mother with Dementia: A Narrative Perspective.” Dementia 20, no. 8 (2021). https://doi.org/10.1177/14713012211014003.

Moral-Fernández, Lourdes, Antonio Frías-Osuna, Sara Moreno-Cámara, Pedro A. Palomino-Moral, and Rafael Del-Pino-Casado. “The Start of Caring for an Elderly Dependent Family Member: A Qualitative Metasynthesis.” BMC Geriatrics 18, no. 1 (2018). https://doi.org/10.1186/s12877-018-0922-0.

Mudrazija, Stipica, Jacqueline L. Angel, Ivan Cipin, and Sime Smolic. “Living Alone in the United States and Europe: The Impact of Public Support on the Independence of Older Adults.” Research on Aging 42, no. 5–6 (2020). https://doi.org/10.1177/0164027520907332.

Nassery, Idris et al. The Objectives of Islamic Law: The Promis and Challenges of the Maqasid Al-Shari’a. New York: Lexington Books, 2018.

Nisa, K. M., and R. Lisiswanti. “Faktor Risiko Demensia.” Majority 5, no. 4 (2016): 86–87.

Rasyid, Arbanur, et.al., “Dynamics of Childless Marriage Through the Lens of Maqasid Al-Shari’a,” Jurnal Ilmiah Peuradeun 12, No. 2 (2024). DOI: https://doi.org/10.26811/peuradeun.v12i2.1182.

Rokicka, Magdalena, and Olga Zajkowska. “Informal Elderly Caregiving and Time Spent on Leisure: Evidence from Time Use Survey.” Ageing International 45, no. 4 (2020). https://doi.org/10.1007/s12126-020-09396-5.

Rönnberg, Jerker, et. al., “Hearing Impairment, Cognition and Speech Understanding: Exploratory Factor Analyses of a Comprehensive Test Battery for a Group of Hearing Aid Users, the N200 Study.” International Journal of Audiology 55, no. 11 (2016). https://doi.org/10.1080/14992027.2016.1219775.

Şengönül, Turhan. “A Review of the Relationship between Parental Involvement and Children’s Academic Achievement and the Role of Family Socioeconomic Status in This Relationship.” Pegem Egitim ve Ogretim Dergisi 12, no. 2 (2022). https://doi.org/10.47750/pegegog.12.02.04.

Stuifbergen, Maria C., and Johannes J.M. van Delden. “Filial Obligations to Elderly Parents: A Duty to Care?” Medicine, Health Care and Philosophy 14, no. 1 (2011). https://doi.org/10.1007/s11019-010-9290-z.

Tao, Hong, and Susan McRoy. “Caring for and Keeping the Elderly in Their Homes.” Chinese Nursing Research 2, no. 2–3 (2015). https://doi.org/10.1016/j.cnre.2015.08.002.

Ugargol, Allen Prabhaker, and Ajay Bailey. “Reciprocity between Older Adults and Their Care-Givers in Emigrant Households of Kerala, India.” Ageing and Society 41, no. 8 (2021). https://doi.org/10.1017/S0144686X19001685.

Vries, Bouke de. “‘I Am Your Son, Mother’: Severe Dementia and Duties to Visit Parents Who Can’t Recognise You.” Medicine, Health Care and Philosophy 23, no. 1 (2020). https://doi.org/10.1007/s11019-019-09931-5.

Walsh, Froma. “The Concept of Family Resilience: Crisis and Challenge.” Family Process, 1996. https://doi.org/10.1111/j.1545-5300.1996.00261.x.

Wardi, Moch Cholid, Abd A’la, and Sri Nurhayati. “Contextualisation Of Al-Maqasid Al-Kulliyat According To The Objectives Of The Individual, Family, Society And Humanity: An Analysis On Jamaluddin ‘Athiyah’s Perspectives.” Malaysian Journal Of Syariah And Law 11, no. 1 (2023). https://doi.org/10.33102/mjsl.vol11no1.389.




DOI: http://dx.doi.org/10.22373/sjhk.v8i2.22734

Refbacks

  • There are currently no refbacks.


Copyright (c) 2024 Herlina Herlina, Muyasaroh Muyasaroh, Husaini Husaini, Bakhrum Bakhrum, Zaimuddin Zaimuddin

Creative Commons License
This work is licensed under a Creative Commons Attribution-ShareAlike 4.0 International License.

Samarah: Jurnal Hukum Keluarga dan Hukum Islam has been indexed by:

Samarah: Jurnal Hukum Keluarga dan Hukum Islam
P-ISSN 2549-3132
E-ISSN 2549-3167